Autistic Thoughts

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Below are the 2 most recent journal entries recorded in the "Autistic Thoughts" journal:

December 15th, 2007

04:03 pm

A Letter I Don't Need to Send
They did it. They actually did it.

I was in the process of writing a sad, timid little post about the offensiveness of The NYU's Ransom Notes campaign, questioning how such a campaign could be compatible with their stated mission to "eliminate the stigma of being or having a child with a psychiatric disorder", or how they intend to promote 'awareness' by conflating the effects of disorders with the effects of ostracization and stigma (not to mention conflating psychiatric disorders and developmental/neurological disabilities), by presenting exaggerated worst-case scenarios without even the slightest mention of how to recognize the conditions that they were painting such bleak pictures of.

The post was going to be entitled "A Letter I'll Never Send", because I saw no point in sending it. I was nervous and frightened of taking even these first tiny baby steps towards public self-advocacy because I'd already seen others try and fail. When a corporation's only response to criticism and outrage is to take it as "evidence that [their] approach is working", what good can one more outraged voice do? When eloquent speakers, concerned parents, and even entire disability rights organizations all seem to be falling on closed ears, what use is one more person? I felt more small and insignificant than I ever had before I'd become aware of the disability rights movement. If the best we can do is still not good enough, is there any point to even trying?

...except.
Except that it worked. Whether it was the media coverage of the criticism or the online petition or the deluge of blogs and emails and phonecalls or the fact that someone noticed Koplewicz's affiliations with Pfizer and his participation in the infamous Paxil Study 329... it worked. As of today, the ads appear to be gone, hopefully for good.

Thank you, Ari Ne'eman, Kristina Chew, Mike Stanton, Bob Kafka, Jim Ward, Autism Hub, Not Dead Yet, the Autistic Self Advocacy Network, ADAPT, TAAP, Alliance for Disabled in Action, and every blogger, advocate, parent, psychologist or other person of any creed or kind who spoke out against this. Thank you not allowing yourselves to be silenced, for fighting even when it seemed to be in vain. Thank you for making it a bit easier for people like me to add our voices to your chorus next time.

Thank you for hope.

Current Mood: amazed
Current Music: Rogue Traders- "Voodoo Child"
Tags: ablism, autism, community, disability, disability rights, media, organizations, self-advocacy

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October 1st, 2007

05:08 pm

[Link]

In the end, who is it who silences our voice?
If anyone's been following this journal, they may have noticed that slowly but surely I'm accumulating a set of communities and interests to associate myself and this journal with. One by one, I'm looking at communities who share the interests that this journal is centered around, seeing what their membership and message is about, and deciding if they or any of their listed interests are something I want to partake in.

I've found a lot of good communities. I've also found a lot of unrelated communities, and a few bad ones. Today, for the first time so far, I found something that truly angered me.

One of those communities was entitled "We Have Autism", which is designed to be a place for, not autistics themselves, but people whose family members are autistic. Apparently there are definitions of the word "have" which neither I nor my dictionary are aware of.

This alone would have barely risen above the level of frustration and annoyance, except that one of the most recent posts was a poem with the repeated line "The autistics still had no voice". It started off deceptively well, decrying Bettelheim and snake oil treatments and the attitude that it's courageous not to kill disabled children... and then it went on to accuse "eccentric but normal" people of falsely defining themselves as autistic, "plagiarizing their cause", and turning the autistics away as curebies. And the only response was an agreement, in boldface.

As if no one could be truly autistic and disagree with the idea of cure. As if being autistic (or otherwise disabled) is so horrific that no one could conceivably be happy as they are and not want their entire existence changed. As if blatantly autistic activists like Amanda Baggs are just geeks co-opting someone else's cause to justify themselves. As if these non-autistic family members who "have autism" are more capable of acting as the voices of autistics than people who truly do have autism, no matter how mild or severe.

"We Have Autism".
"Autism Speaks".
"Voice of the Retarded".

Who is it who's really silencing the voices of the developmentally and cognitively disabled?

Current Mood: disgusted
Current Music: The Dresden Dolls- "Girl Anachronism"
Tags: ablism, autism, cognitive disability, community, disability rights, do-gooderism, language, self-advocacy

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