Autistic Thoughts

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Below are the 7 most recent journal entries recorded in the "Autistic Thoughts" journal:

December 15th, 2007
04:03 pm [Link]	A Letter I Don't Need to Send They did it. They actually did it. I was in the process of writing a sad, timid little post about the offensiveness of The NYU's Ransom Notes campaign, questioning how such a campaign could be compatible with their stated mission to "eliminate the stigma of being or having a child with a psychiatric disorder", or how they intend to promote 'awareness' by conflating the effects of disorders with the effects of ostracization and stigma (not to mention conflating psychiatric disorders and developmental/neurological disabilities), by presenting exaggerated worst-case scenarios without even the slightest mention of how to recognize the conditions that they were painting such bleak pictures of. The post was going to be entitled "A Letter I'll Never Send", because I saw no point in sending it. I was nervous and frightened of taking even these first tiny baby steps towards public self-advocacy because I'd already seen others try and fail. When a corporation's only response to criticism and outrage is to take it as "evidence that [their] approach is working", what good can one more outraged voice do? When eloquent speakers, concerned parents, and even entire disability rights organizations all seem to be falling on closed ears, what use is one more person? I felt more small and insignificant than I ever had before I'd become aware of the disability rights movement. If the best we can do is still not good enough, is there any point to even trying? ...except. Except that it worked. Whether it was the media coverage of the criticism or the online petition or the deluge of blogs and emails and phonecalls or the fact that someone noticed Koplewicz's affiliations with Pfizer and his participation in the infamous Paxil Study 329... it worked. As of today, the ads appear to be gone, hopefully for good. Thank you, Ari Ne'eman, Kristina Chew, Mike Stanton, Bob Kafka, Jim Ward, Autism Hub, Not Dead Yet, the Autistic Self Advocacy Network, ADAPT, TAAP, Alliance for Disabled in Action, and every blogger, advocate, parent, psychologist or other person of any creed or kind who spoke out against this. Thank you not allowing yourselves to be silenced, for fighting even when it seemed to be in vain. Thank you for making it a bit easier for people like me to add our voices to your chorus next time. Thank you for hope. Current Mood: amazed Current Music: Rogue Traders- "Voodoo Child" Tags: ablism, autism, community, disability, disability rights, media, organizations, self-advocacy (2 comments \| Leave a comment)
November 15th, 2007
04:44 pm [Link]	In Which I Am Apparently Not Pro-Choice Many months ago, a friend of mine posted an entry asserting that anyone who would make a "I'm pro-choice, but..." statement or otherwise has any reservations about their reproductive rights stance should not truly consider themselves "pro-choice". I didn't say anything at the time; I was even less courageous about my advocacy than I am now, and everyone else commenting was falling over themselves in agreement. I didn't have the time, energy, or confidence to speak up then. I guess I still don't entirely have the confidence since I'm saying this here and now rather than at the time or somewhere they're likely to read it. Better late than never, I suppose. ( 'I am pro-choice, but.... ) I am pro-choice, and I long for the day when all lives will be seen as having equal dignity and value. Current Mood: serious Current Music: Massive Attack- "Teardrop" Tags: ablism, disability rights, eugenics (4 comments \| Leave a comment)
October 10th, 2007
03:26 pm [Link]	Possibly the Most Disturbing Thing I've Ever Heard ( We now return you to your regularly scheduled random blogging ) Since the initial news about Katie Thorpe broke, I've been seeking out and reading a lot of posts both in reaction to her case, and older responses to Ashley X... and outside of the disability rights posters (and not even all of them), there's a whole lot of really ugly ideas being voiced. Even though I went into this expecting nothing less, the sheer breadth and depth and vileness of what I've been seeing is still painful. And even then, some things stand out as especially awful. The fact that I could come across this quote AT ALL (let alone on a liberal, progressive blog, let alone without a single person voicing disagreement): "Amanda's thread also had a poster who suggested that disabled people should have been involved in the decision-making process, which really creeps me out." ...I just can't even begin to format a coherent response to that emotionally, let alone rationally or verbally. Current Mood: horrified Current Music: Genesis- "Land of Confusion" Tags: ablism, disability rights, sterilization (Leave a comment)
October 7th, 2007
03:49 pm [Link]	Ashley All Over Again Nine months ago, a spokesperson for the British Medical Association responded to the news of Ashley X by stating "If a similar case occurred in the UK, we believe it would go to court and whatever decision was ruled would be in the best interests of the child." They're going to have to make their ruling a bit sooner than they probably expected. Not that this should really come as a surprise to anyone who was closely following the news about Ashley. Katie can't speak, and they believe (or perhaps more accurately, assume) that she understands very little of what they say. To take away the "discomfort, pain, and mood swings", her mother and a team of surgeons want to inflict the discomfort, pain, and possible mood swings of a hysterectomy. Because she supposedly cannot understand menstruation and they believe that the natural functions of her body will cause her unnecessary indignity, they want to subject her to a surgery which she supposedly cannot understand and the unnecessary indignity of an unnatural and painful incursion on her body. She may never marry or have children or know love and consent to sex, but she will know the invasion of her sexual parts without her consent. This isn't even a "pillow angel" this time, lying in a bed unable to lift her head or roll over. This is a fourteen-year-old girl who loves to go to theme parks and ride horses. She has a family who (supposedly) love her and who take care of her needs, she's described as taking joy in them and in her favorite pastimes- and yet her mother says "her life expectancy is poor". Puberty doesn't have to prevent Katie from doing anything she likes unless her mother lets it- it's not as if there aren't accessible theme parks or wheelchair ramps for disabled horseback riders. This is a disabled girl whose mother is determined not to let grow up into a disabled woman. This is what comes of the belief that whatever parents of disabled children do to them must be right because "they'd never hurt their child, they love them!". This is what comes of having more sympathy for the caregivers than those being cared for. This is what comes of the infantilization of the disabled.This is what comes of the belief that a life with less ability is one with less quality. This is what comes of the idea that dignity is not something inherent but is something determined on a utilitarian sliding scale. The United States overturned the compulsory sterilization of the cognitively and developmentally disabled in 1956; the United Kingdom in 1973. I pray that the inhumane treatment of Katie and Ashley does not signify the beginning of a return to those times. Current Mood: enraged Current Music: E Nomine- "Schwarze Sonne" Tags: ablism, cognitive disability, disability rights, medical, sterilization (3 comments \| Leave a comment)
October 4th, 2007
10:21 pm [Link]	Linkdrop Thanks to a poster at no_pity, I've been made aware of this lovely short film called "Talk". Stuff like this really needs more exposure. Watch it here: Part 1 Part 2 or here, with captioning and sign (presumably in BSL): Part 1 Part 2 Current Mood: giggly Current Music: Rockapella- "Zombie Jamboree" Tags: ablism, disability rights, humor, linkspam, video (Leave a comment)
October 1st, 2007
05:08 pm [Link]	In the end, who is it who silences our voice? If anyone's been following this journal, they may have noticed that slowly but surely I'm accumulating a set of communities and interests to associate myself and this journal with. One by one, I'm looking at communities who share the interests that this journal is centered around, seeing what their membership and message is about, and deciding if they or any of their listed interests are something I want to partake in. I've found a lot of good communities. I've also found a lot of unrelated communities, and a few bad ones. Today, for the first time so far, I found something that truly angered me. One of those communities was entitled "We Have Autism", which is designed to be a place for, not autistics themselves, but people whose family members are autistic. Apparently there are definitions of the word "have" which neither I nor my dictionary are aware of. This alone would have barely risen above the level of frustration and annoyance, except that one of the most recent posts was a poem with the repeated line "The autistics still had no voice". It started off deceptively well, decrying Bettelheim and snake oil treatments and the attitude that it's courageous not to kill disabled children... and then it went on to accuse "eccentric but normal" people of falsely defining themselves as autistic, "plagiarizing their cause", and turning the autistics away as curebies. And the only response was an agreement, in boldface. As if no one could be truly autistic and disagree with the idea of cure. As if being autistic (or otherwise disabled) is so horrific that no one could conceivably be happy as they are and not want their entire existence changed. As if blatantly autistic activists like Amanda Baggs are just geeks co-opting someone else's cause to justify themselves. As if these non-autistic family members who "have autism" are more capable of acting as the voices of autistics than people who truly do have autism, no matter how mild or severe. "We Have Autism". "Autism Speaks". "Voice of the Retarded". Who is it who's really silencing the voices of the developmentally and cognitively disabled? Current Mood: disgusted Current Music: The Dresden Dolls- "Girl Anachronism" Tags: ablism, autism, cognitive disability, community, disability rights, do-gooderism, language, self-advocacy (Leave a comment)
September 8th, 2007
06:50 pm [Link]	Bury This Story Lately, I've found myself thoughtlessly using the word "lame" as an insult, something I've normally made a point of trying not to do. It may not have the same force behind it as "half a person","cripple", "gimp", or "retard", but it's still a slur, and it's still as pathetic an insult as using "gay" as a synonym for "pathetic", especially from someone who's actively trying to fight against the idea that physical disability and mobility impairments are inherently pathetic. On reflection, I think this bad habit is probably a consequence of my presence on the newsfeed site Digg. I am on there regularly, digging up stories and comments championing the basic human rights of the disabled and digging down articles and comments expressing bigoted or just plain scientifically inaccurate views about us. Comments are buried without any need to give explanation, but burying a story allows you to inform the site's algorithms why you think a bit of news doesn't deserve visibility. Was it a duplicate of an article already posted? Was it spam? Was the headline, description, or article inaccurate? Or is it just "OK, This is Lame"? Every time I read the explanations to myself as I bury someone for repeating scientifically disproven and debunked theories about the causes of autism, or insisting that there's nothing wrong with disowning your Down's Syndrome child, or insinuating that a pair of wheelchair users suing an inaccessible store must be in it just for the money, or saying that the disabled are just burdens on society and should be aborted... I wind up repeating to myself, "OK, This is Lame". Every time I bury them, I am semantically equating the people who society describes as "lame" with those bigoted pieces of human garbage. And that's just pathetic. Current Mood: chagrined Current Music: Scooter- "Don't Let It Be Me" Tags: ablism, internalised ablism, language, media (Leave a comment)