Autistic Thoughts ([info]thauts) wrote,
@ 2007-10-07 15:49:00
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Current mood: enraged
Current music:E Nomine- "Schwarze Sonne"
Entry tags:ablism, cognitive disability, disability rights, medical, sterilization

Ashley All Over Again
Nine months ago, a spokesperson for the British Medical Association responded to the news of Ashley X by stating "If a similar case occurred in the UK, we believe it would go to court and whatever decision was ruled would be in the best interests of the child."

They're going to have to make their ruling a bit sooner than they probably expected.

Not that this should really come as a surprise to anyone who was closely following the news about Ashley.

Katie can't speak, and they believe (or perhaps more accurately, assume) that she understands very little of what they say. To take away the "discomfort, pain, and mood swings", her mother and a team of surgeons want to inflict the discomfort, pain, and possible mood swings of a hysterectomy. Because she supposedly cannot understand menstruation and they believe that the natural functions of her body will cause her unnecessary indignity, they want to subject her to a surgery which she supposedly cannot understand and the unnecessary indignity of an unnatural and painful incursion on her body. She may never marry or have children or know love and consent to sex, but she will know the invasion of her sexual parts without her consent.

This isn't even a "pillow angel" this time, lying in a bed unable to lift her head or roll over. This is a fourteen-year-old girl who loves to go to theme parks and ride horses. She has a family who (supposedly) love her and who take care of her needs, she's described as taking joy in them and in her favorite pastimes- and yet her mother says "her life expectancy is poor". Puberty doesn't have to prevent Katie from doing anything she likes unless her mother lets it- it's not as if there aren't accessible theme parks or wheelchair ramps for disabled horseback riders. This is a disabled girl whose mother is determined not to let grow up into a disabled woman.

This is what comes of the belief that whatever parents of disabled children do to them must be right because "they'd never hurt their child, they love them!". This is what comes of having more sympathy for the caregivers than those being cared for. This is what comes of the infantilization of the disabled.This is what comes of the belief that a life with less ability is one with less quality. This is what comes of the idea that dignity is not something inherent but is something determined on a utilitarian sliding scale.

The United States overturned the compulsory sterilization of the cognitively and developmentally disabled in 1956; the United Kingdom in 1973. I pray that the inhumane treatment of Katie and Ashley does not signify the beginning of a return to those times.



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[info]moggymania
2007-10-08 06:49 am UTC (link)
You said almost precisely what I was thinking… I am trying to write a post about it, but floundering a little. :-p

I have no clue who you are, just in case you were wondering… :) Whoever you are, you appear to be one of the strongest writers I've encountered; I'm glad you're starting to work on your ability to publicly join in activism work.

I know you don't want to be identified, but would it be okay to link (or repost with credit to "a friend that wishes to remain anonymous") to particularly insightful entries like this one?

(A thought for if you ever wanted to “go public” without revealing who you are, or possibly if you were to let us link to a post… You could put the “I'm a friend incognito” aspect of your userinfo into a friends-locked far-future post, and aside from the usual generic stuff, just have a note asking that people you've newly friended please look at your short intro post.)

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[info]thauts
2007-10-08 01:26 pm UTC (link)
I'm incredibly honored that you think my writing is so strong and want to share it with others; you're one of the people whose writings inspired the creation of this journal, so hearing that from you means a lot to me.
(I just hope that this praise doesn't mean that I'm not still allowed to have frivolous or just plain bad entries sometimes, too. ;-p )

Linking or reposting is always fine by me! If I didn't want to accept the possibility of these posts being read by others, I'd keep them hidden away on my hard drive where no one else could see. I'm just not ready yet for what I write here to be connected with my other online identitiy(s) or with myself in "real life".

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[info]thauts
2007-10-08 01:43 pm UTC (link)
...And I think I may have exhausted much of my coherence writing the original post, because I've read over your last paragraph four or five times now and I'm still failing to parse what you're saying. Sorry.

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